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7/29/2008 11:06 PM
Amanda McNamee
Hi --My name is amanda and I was diagnoised with stage 3 melanoma in dec 2007. They got all the Melanoma out of my face were the mole was and then it spread to one lymph node so I had to have more surgery on my neck to get the rest of the lymph nodes out. I am now doing interferon injections untill march 2009. Its really hard. I am having tons of symptoms and major depression. I have no appetite, My mouth tastes weird all the time, fatigue, no energy or motivation, chills, muscle aches, headaches, awful nausia and stomach aches and my hair is thinning pretty bad. Its crazy I am going through this. I never thought this would happen to me at age 30. I had a wedding planned that I had to cancel and we just bought a house and I love my job and life was good and then you get this news and it really makes you want to enjoy life even more. I live by jimmy valvano's speech saying "Dont give up, Dont ever give up".
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7/12/2008 5:56 PM
Nicole McGuire
My name is Nicole. I am 28 years old. I am a wife, a mother of two small boys, and I am proud to say that I am also cancer survivor. I found out 5 weeks after my second son was born that I had stage 2b Hodgkins. Talk about hard. I took the news very hard. My prognosis was very good, but I couldn't wrap my brain around that. All I could think about was my babies not having a mother. The start of my journey was the hardest thing I have ever delt with. Mentally I was so tired from all of the information I had been given. Physically I thought I was going to pass out everyother second. Here I was recovering from giving birth to jumping into bone marrow and lymphnode biopseys and scan after scan. I got my port put in on November 17th, then Chemo started on the 27th. At my first appointment the doctor and his staff went over all of my medications and the side effects. All I remember from that day is hearing that I would lose my hair. That even overshadowed the throwing up. After my first treatment it seemed to get easier. I still was violently ill, but the countdown for it all to be over was on. That was untill my last treatment was 1 week away. I was so scared to be done. It was the moment of truth. Was I really done? Did I beat cancer? Was I CANCER FREE? Then it was time, not just any time but result time. I held my husband and just staired at the called id. I was actually scared to hear my results. Finally he made me awnser the phone. I picked up and just sat on the other end silent. Finally the nurse said "Nicole, You did it! Your scans came back showing no signs of cancer in your body." I just kept asking her if she was sure. It has now been 2 months. I am back to work, and mot importantly back to my life, my kids, and my family. Being a survivor is more then just getting a second chance. It is the most unexplainable feeling of pride that I think I could ever feel. I now live my life for those who never received that all clear call. I don't take things for granted. I tell people what I think as I am thinking it, I try not to let more that a few days go by without talking to all of the wonderful people in my life.
I love to talk to other people that have experienced what I have been thru, And I would love to be here for anyone that might need a sholder or a glance into their cancer free future. STAY STRONG!
Nicole
Dearborn MI>
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3/15/2008 2:37 AM
Justin Hill
Hello All
Lately I'm called Turtle , a name picked up at First Descents (FD) last year. I just want to say, Thanks for helping with such an awesome program! I was mostly pushed into one of the week long camps last year from the folks at Children's Hospital in Denver, CO. When at the time my diagnosis of; a class 4 stage 4 uber rare cancer, and with a name only Mary Poppins might say rightly. I was given about a week to a month left originally. Ahead the prognosis was still fresh and looming larger than life. Figuring I'd be dead in a few months the idea of learning to kayak would be a fun way to go out in style. River Kayaking had always been a goal unrealized in life! The now, life long friends and relationships seriously helped through the entire treatment regimen. Especially the times some of us would get together after camp to go paddle the rivers. A great time was going out half about way through 2 months of radiation by Glenwood in Springs class 3 rapids. My hands finally got to weak to paddle and Brad Ludden (FD's creator and friend) grabbed my kayak and we floated the rest of Shoshone together. Well looking back on the last year's fight through treatments plus everything going down hill after radiation I now thank God for you guys and F.D. as something that helped buoy me through tough times, and monotony of long drives to Denver for chemo every Friday. So the now that I'm finished chemo on Feb, 29th; kayaking this spring with a good prognosis will be my spring board for PT and rehab. Who knows... Teva games this year or next? The Cancer also made me quit schooling and work so now I'm going for another unrealized goal: EMT training this spring. Pray chemo brain doesn't get too hairy.
Any running event is a long ways off till I get a bit of muscle back on this stick figure body; however, If Ullman decides to get in any kayak event let me know I'll be there paddle in hand. So again thank you. My thoughts are with you all fighting the hard fight.
Turtle
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3/9/2008 4:03 PM
Janette Anneken
Hi all, First I am not so young. I am 49. I was diagnosed with Non-Hodgkins Lymphoma on August 14, 2006. I was going to school at the College of Mount Saint Joseph in Delhi Cincinnati, Ohio. I had a tumor the size of a baseball attached to my small intestine. It was revealed by a CAT scan when I went to the ER. Later the PET scan showed 7 lesions on my spleen and liver.
Good Samaritan Hospital has been the best hospital, I had the best oncologist Dr. James Maher.
But I did not know the hardest part comes after the 8 consecutive chemotherapy treatments. I gained weight like Toni. I was not allowed to go to school or work. I am still having CAT scans every three months and I have just gone back to school part-time.
I myself, questioning as to what God has in store for me. My hair has finally grown back but now I have skin cancer that I had before the tumor was caught.
Community out there, I need your strength.
My classmate from the I have Wings Breast Cancer Foundation has been the most awesome woman having been a survivor herself along with other friends.of mine.
God bless you all.
Janette Anneken
P.S. I am the one in the middle, the old lady.
Janette Anneken
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2/22/2008 11:53 PM
Janice Lourenco
My name is Janice and I was diagnosed with Acute M. Leukemia in February 14th, 2008. What a Valentines Day...huh? Today is my last day of my 7-day Chemo treatment. My friend left me her laptop and I just found the Ulman Cancer Fund Web site. I love everything on here and it gives me so much strength to know that other young adults can understand what I'm going through. I'm 28 and look forward to being very active on this site. Right now it is late and I need to get some sleep in before the nurses start coming for their (what seems like) hourly vital checks. So glad that I get to share my story with you guys and gain strenth from all the members on here.
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7/24/2007 2:41 PM
Stephanie Spiece
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3/7/2007 10:11 AM
B Caulker
Hello all, I am 27 years old and was recently diagnosed with colon cancer. I have no family history and I am a non smoker. I am in the middle of my last semester of graduate school. I have to believe that I will get through this with my head up. I am greatful for all the words of encouragements that I have read. Have faith and God will see you through.
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11/2/2006 3:14 PM
Paul King
Hi all, I have recently been diagnosed with lung cancer at age 32. It is a hard pill to swollow when you hear this kind of news. I am a nonsmoker that was exposed to second-hand smoke for most of my youth. I have a wonderful wife and my first child is due in 2 weeks. This has been a blessing and has kept me focused on fighting this cancer with everything I have. I know it is hard to be positive and motivated, but, the one thing we have going for us is our youth. Keep smiling and stay strong... If anyone wants to get in touch with me please feel free to e-mail. We can rally each other through these tough times.
Cheers.
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10/22/2006 3:56 PM
Amanda B.
I did not know that sites like this existed, i'm glad to know that there are others out there that can help me. My father passed away of cancer in April 2006, I was 15(and still am) it's been 6 months now and it's been the biggest strugle in my life, i'm in councling to help my griveing, it's getting harder everyday.
My dad first was sick with esphagial cancer(sp?)....then it moved to his liver, and then his brain. He wasn't even sick for even a year.......this has been the worst thing in my life and it has made me grow up faster than I shold have. But I know he's not in pain anymore at least.
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10/6/2006 10:52 AM
Corrina
What a great organization! I just learned about it today. I was diagnosed with breast cancer at 26. The other survivors I've met along the way have all been great, but it's especially nice to meet others in my age range. Cancer was a necessary test I had to face to become the person I am today - it put everything in perspective. Best of luck to the other survivors out there - stay strong!
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