Articles and Research on the
Adolescents and Yong Adult Population

Diagnosis/Biology of Cancer | Quality of Life |
Distinguishing Adolescent and Young Adult Needs | Treatment |
Survivorship | Clinical Trials | Community Support and Advocacy

Diagnosis/Biology of Cancer

• Buckman, Robert. What You Really Need to Know About Cancer, A Comprehensive Guide for Patients and Their Families (Johns Hopkins University Press 1997).



• Harmon, J. et al. Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment, and Recovery (American Cancer Society 2002).

Quality of Life

• Evans, Sioned E. and Martin Radford. Current Lifestyle of Young adults Treated for Cancer in Childhood, 72(5) Arch Dis Child 423 (May 1995).



• Hobbie, Wendy et al. Symptoms of Posttraumatic Stress in Young Adult Survivors of Childhood Cancer, 18:24 Journal of Clinical Oncology 4060 (December 15, 2000).



• Hustins, K. Newfound Friends: A Support Group for Adolescents With Cancer, 3(1) Canadian Oncology Nursing Journal 11 (February 1993).



• Jaase, Joan E. and Celeste R. Phillips. The Adolescent/Young Adult Experience, 21(3) Journal of Pediatric Oncology Nursing 145 (May-June 2004)



• Sawyer, M. et al. Childhood Cancer: A 4-Year Prospective Study of the Psychological Adjustment of Children and Parents, 22(3) Journal of Pediatric Hematology and Oncology 214 (May-June 2000).



• Stam, H. et al. Social and Emotional Adjustment in Young Survivors of Childhood Cancer, 9(7) Supportive Care in Cancer 489 (October 2001).



• Roberts, C.S. et al. A Support Group Intervention to Facilitate Young Adults’ Adjustment to Cancer, 22(2) Health and Social Work 133 (May 1997).



• Zebrack BJ. and Lonnie Zeltzer. Quality of life issues and cancer survivorship, 27(4) Current Problems in Cancer.



• Zeltzer, L.K. Cancer in Adolescents and Young Adults, Psychosocial Aspects, Long-Term Survivors, 71 Cancer 3463 (10 Supp., May 15, 1993).

Distinguishing AYA Needs

• Bleyer, W.A. Young Adults | Cancer | Clinical Trials: Breakthrough?, Reaching Out (2004).



• Bleyer, W.A. Cancer Brings Distinct Challenges to Young Adults and Older Adolescent Patients, 3 Hematology & Oncology Today 40 (2002).



• Duenwald, Mary and Denise Grady. Young Survivors of Cancer Battle Effects of Treatment, New York Times (January 8, 2003).



• Murray, J.C. et al. Adolescent Cancer Patients and Their Special Needs: The Creation of a “Teen Cancer Clinic’ at a Pediatric Oncology Center, 28(2) Journal of Adolescent Health 140 (2001).



• Reaman, G.H. and A. Bleyer. Infants and Adolescents With Cancer: Special Considerations, Principles and Practices of Pediatric Oncology, 409-428 (4th ed., JB Lippincott 2002).



• Roan, Shari. Cancer’s Lost Generation, Los Angeles Times (August 11, 2003).



• Stiller, Charles. Epidemiology of Cancer in Adolescents, 39 Med Pediatric Oncology 149 (2002).

Treatment

• Albritton, K. and W.A. Bleyer. The Management of Cancer in the Older Adolescent, 39 European Journal of Cancer 2584 (2003).



• Dreyer, Z.E. et al. Late Effects of Childhood Cancer and Its Treatment. Principles and Practices of Pediatric Oncology, 1431-1462 (4th ed., JB Lippincott 2001).



• Ostrom, Carol M. Good Medicine Begins With a Good Doctor-Patient Relationship, Seattle Times (March 17, 2004).

Survivorship

• Lozowski, S.L. Views of Childhood Cancer Survivors, Selected Perspectives, 71 Cancer 3354 (Supp. 10, May 15, 1993).



• Marcus, Amy Dockser, Cancer Fight Shifts to Survivors, Wall Street Journal (March 24, 2004).



• National Cancer Policy Board. Childhood Cancer Survivorship, Institute of Medicine National Resource Council (The National Academic Press 2003).



• President’s Cancer Panel. Living Beyond Cancer: A European Dialogue, National Cancer Institute (May 2004).



• Termuhlen, A. et al. Health Status, Medical Care, Preventive Screening, and Risk Behaviors of Adult Survivors of Cancer Diagnosed During Adolescence, 23 Proc American Soc Clinical Oncology (2004)



• U.S. Department of Health and Human Services. A National Action Plan for Cancer Survivorships: Advancing Public Health Strategies, Center for Disease Control (April 2004).



• U.S. Department of Health and Human Services. Life After Cancer Treatment, National Cancer Institute (April 2002).

Clinical Trials

• Bleyer, W. Archie. Cancer in Older Adolescents and Young Adults: Epidemiology, Diagnosis, Treatment, Survival, and Importance of Clinical Trials, 38 Med Pediatric Oncology 1 (2002).



• Bleyer, W.A. The U.S. Pediatric Cancer Clinical Trials Programmes: International Implications and the Way Forward, 330European J Ca 1439 (1997).



• Bleyer, W.A. et al. National Cancer Clinical Trials: Children Have Equal Access; Adolescents Do Not, 21 J Adolescent Health 366 (1997).



• Boxer L. and P. Newberger. The Lost Generation: In Clinical Trials Where are the Teenagers?, 2(1) Hematology & Oncology Today 6 (April 2001).



• Murray, J.C. et al. Moving More Adolescents, Young Adults into Cancer Trials, 15(6) CAP Today (College of American Pathologists) 11 (2001).



• Public Health Service, National Institutes of Health. Cancer Clinical Trials: A Resource Guide for Outreach, Education, and Advocacy, National Cancer Institute (October 2001).



• Public Health Service, National Institutes of Health. Cancer Clinical Trials: The In-Depth Program, National Cancer Institute (October 2001).

Community Support and Advocacy

• President's Cancer Panel. Living Beyond Cancer: Finding a New Balance, National Cancer Institute (2004)



• President’s Cancer Panel. Voices of a Broken System: Real People, Real Problems, National Cancer Institute (March 2002).



• U.S. Department of Health and Human Services. Ways You Can Make a Difference in Cancer, National Cancer Institute (June 2002).

Disclaimer: This list is a sample of information related to cancer only and in no way represents a comprehensive source of information on any topic. UCF does not endorse any of the articles and holds no liability or responsibility as to their content, importance, accuracy, quality, relevance, completeness, availability or veracity. Further, UCF is not affiliated with any the authors and UCF neither advocates reliance on nor endorses anything contained within the materials. Medical advice requires a medical examination and you should consult a doctor with your concerns.